Hi, my name is Angela, I live in Southern Maine with my husband and three beautiful children.
I am very excited to be part of the Patient Coach Program. My role, however, is unique because I am not an ostomy patient.
My daughter Kaitlyn has Crohn’s Disease and underwent temporary ileostomy surgery in 2017 following a bad flare and negative reactions to medications.
Since then, I have been her primary caregiver, and we have been a team with everything that has come along with having an ostomy including now being Patient Coaches! We are very excited and feel blessed for the opportunity to help others in a similar situation.
Kaitlyn is an 11-year-old Crohn’s warrior.
She lives in Southern Maine with her mom (Angela), dad (Sean), and two younger brothers (Keegan and Kamden).
Kaitlyn was officially diagnosed with Crohn’s in 2015 at nine years old after being ill for a long time. We now know was due to IBD.
In the summer of 2017, Kaitlyn had a severe flare and bad allergic reaction to the biologic meds that she was on. She was completely inflamed all the way through her digestive tract internally and had terrible rashes from head to toe all over her body. In September of 2017, she ended up in the hospital for eleven days where they started a strict, nutritional therapy with a liquid only diet via feeding tube. While in the hospital, she also had ileostomy surgery.
Kaitlyn’s stoma is named “Jim,” and we talk to him like he is a member of the family. Sometimes he irritates us, and that’s okay. The type of ileostomy Kaitlyn has is temporary; however, she is already seeing the benefits of how much better she feels since recovering from surgery. At this point, she has no desire to have it reversed.