The Patient Coach Program

Total 61 Posts

The Power of The Ostomy Community

By: Rena Münster For me, part of adjusting to life with an ostomy was getting involved in the ostomy community. I remember being overwhelmed with emotion walking into my first UOAA support group. It was refreshing to be in a room with 25 other people who all had an ostomy.

I Celebrate My Life With You Even In The Hard Times

By: Bethany Lowe Although “in sickness and in health” is part of the vows you state when you get married, it’s sometimes easier said than done. My husband, Louis, and I have dealt with this since before we were engaged or married because he met me right after I

Struggling to Gain Traction: When Stoma Surgery Leads to Complications

By: Noelle Schuyler Surgery Recovery- now what?! I’ve always been someone who is prone to unique complications when it comes to my Crohn’s disease. Weird side effect of a new medication? It’s likely I’ll experience it. Odd surgical complication? I’m there! I spent the week

How Sepsis Almost Killed Me

By: Sarah Vasilakos This January marks 12 years since my own personal experience with developing and surviving sepsis. Anytime we have an infection, chemicals are released into the bloodstream leading to an inflammatory response to occur. This is our body’s defense mechanism to “fight off” the infection and start

Battling Crohn's as a Nurse Practitioner and Patient

By: Charlotte Rensberger When you have a chronic medical condition, having a background in nursing can be both a blessing and a curse. I have been battling Inflammatory Bowel Disease since I was 16 years old and graduated nursing school when I was 19. Even before I began having symptoms,

I had an Eating Disorder on Top of Short Bowel Syndrome

By: Chloe Moody “You’re not skinny anymore.” These words hit like a train coming from my pediatric gastroenterologist. In that moment, my entire identity had been compromised, diminished, erased. How could I not be skinny anymore? Having short bowel syndrome, it was like a requirement to be underweight, to

I Got Pregnant With An Ostomy

By: Katie Cuozzo I am so grateful to have gotten pregnant not only once, but now for the second time.  Little did I know that with one of these pregnancies, I was also going to have an ostomy bag. Thankfully for me, pregnant life with and without an ostomy hasn’